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MISSION The Mission of Families Helping Families of Greater New Orleans is to educate and connect children and adults with disabilities, and their families to resources, services, and supports to attend school, work, and thrive in their communities.
BOARD OF DIRECTORS Board Chair Jo Ann D. LoRusso, Ph.D Vice Chair Debra Dixon M.Ed. Treasurer Shantia White Secretary Reynecia Ricks Board of Directors Katie Furtado Wilbert Johnson Kristine K Johnstone
FHF of GNO's TEAM Executive Director Laura S. Nata lsnata@fhfofgno.org Ext. 2009 Director, Education and Support Karen Scallan kscallan@fhfofgno.org Ext. 2004 Public Relations Manager Kristine Dauzat kdauzat@fhfofgno.org Ext. 2008 Administrative Assistant Liz Dumas ldumas@fhfofgno.org Ext. 2002 Programs Coordinator Maryury Templet mtemplet@fhfofgno.org Ext. 2006 Peer Support, Youth & Transition Specialist Steven Nguyen snguyen@fhfofgno.org Ext. 2012 Peer Support Specialist Carolina Olivia colivia@fhfofgno.org Ext. 2017 Peer Support Specialist Heather Wilson hwilson@fhfofgno.org Ext. 2018 Intake & Outreach Specialist Jamie Nata jnata@fhfofgno.org Ext. 2026
700 Hickory Avenue Harahan, LA 70123 504.888.9111 | 800.766.7736 info@fhfofgno.org | fhfofgno.org
Louisiana Council's Advocacy Network p.36 Disability Assessment & Coordination p.38 Create an Emergency Plan p.39 Voices of Families p.41 Stay Connected With FHF p.42
“Healing doesn’t end at discharge, it evolves.”
Walking the Journey Together p.04 OCDD's Self-Direction Meeting Summary p.06 Building a More Inclusive Community p.07 Building a Louisiana Where Every Child Belongs p.08 Updates to Medicaid p.10 Resources Available for Social Security Income Eligible Youth p.12 From Brain Injury to Beautiful Art p.13 Safe Haircuts for All p.16 Youth Health Transition Survey p.18 Leading with Purpose p.19 Awareness Calendar/Jefferson Parish Human Service Authority p.21 Families Helping Families of Greater New Orleans Family Fun Day p.22 Caring for Children with Medical Complexities p.23 Family Certified Nursing Assistant Model p.24 Free Webinars p.25 April Training Calendar p.26 May Training Calendar p.28 June Training Calendar p.30 Summer Fun Magazine p.32 4 Steps to Stronger Self-Advocacy p.33 Youth Virtual Hangout p.34 Independent Futures That Work p.35
CONTENTS
At Families Helping Families of Greater New Orleans, this work is deeply personal. For many members of our team, our journey with Families Helping Families did not begin as employees; it began as parents, caregivers, and family members searching for answers. In fact, more than 70% of our staff first connected with FHFofGNO while seeking support for their own loved ones with disabilities or special healthcare needs. We were the families sitting in the audience. We attended the workshops. We sat in the trainings. We showed up at conferences searching for answers, guidance, and hope, just like the families and professionals we serve today. Because of those experiences, we understand what it feels like to navigate complex systems, attend Individualized Education Program (IEP) meetings, ask difficult questions, and advocate for the services our loved ones need to thrive. We understand the emotions that come with the journey, the uncertainty, the determination, and the joy that comes with every milestone achieved. When you reach out to Families Helping Families of Greater New Orleans, you are not simply contacting an organization. You are connecting with someone who has walked a similar path. "More than 70% of our staff first came to Families Helping Families as parents or caregivers seeking support." A TEAM GUIDED BY KNOWLEDGE AND EXPERIENCE While our personal experiences shape our compassion and understanding, our work is also grounded in professional training, national expertise, and ongoing learning. Our staff members are supported by highly credentialed national leaders who provide technical assistance to Parent Training and Information Centers (PTIs) across the country. This guidance ensures the information we share with families is accurate, current, and aligned with federal and state education policies. Members of our team regularly participate in professional development through nationally recognized organizations, including: Center for Parent Information and Resources (CPIR) Center for Appropriate Dispute Resolution in Special Education (CADRE) Council of Parent Attorneys and Advocates (COPAA) We also collaborate with local experts in special education, disability services, and family support systems throughout Louisiana. Some members of our team bring more than 25 years of experience in disability advocacy and special education. Others are newer to the field but bring incredible passion, dedication, and a strong commitment to learning. Together, we form a team that is constantly growing, learning, and improving. ADVOCATES WHO UNDERSTAND THE JOURNEY When families contact FHFofGNO, they often expect to speak with a professional who can provide information or explain their rights. What many discover is something even more meaningful. They are speaking with someone who understands. Many members of our team have personally navigated: IEP and 504 meetings Early intervention services Transition planning for adulthood Therapy and medical systems Community services and disability supports We have asked the same tough questions. We have celebrated the same victories. And we have leaned on the community during the challenging moments. The people who work at Parent Training and Information Centers across the country, including here at Families Helping Families, are not advocates only by profession. They are advocates by life experience. Many are parents, siblings, spouses, caregivers, or family members of individuals with disabilities. That personal connection strengthens our dedication to the work we do every day. WALKING THE JOURNEY TOGETHER At Families Helping Families of Greater New Orleans, we believe that no family should have to navigate the disability journey alone. Our mission is built on the idea that when families have the right information, support, and connections, they are empowered to create meaningful opportunities for their loved ones. Whether a family is seeking guidance about special education rights, assistive technology, dispute resolution, or community resources, our team is here to listen and help them take the next step forward. If you are looking for support or guidance, it is okay to reach out for help. You do not have to navigate this journey alone. Families can also find trained advocates nationwide by using the Advocate Locator on the Center for Parent Information and Resources (CPIR) website. “When families, advocates, and communities walk the journey together, hope becomes action and challenges become possibilities.”
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By Laura S. Nata, Executive Director
Walking the Journey Together
OCDD’s Self-Direction Employer’s Meeting Summary
By Karen Scallan, Director of Education and Support
OCDD held its quarterly Self-Direction Employer’s Meeting on March 10th . All Self-Direction Employers are invited to attend these quarterly meetings to get up to date information, ask questions and to have short training courses on topics employers are asking about. At this meeting, OCDD took the opportunity to have a presenter from LSU Agricultural Center, Dr. Aaron Ashbrook, Asst. Professor of Uran/Peri-Urban Entomology, present regarding bed bugs. This has been a recent issue as reported to OCDD by several Support Coordinators. Families have been reaching out on how to handle eliminating the pests. If you would like more information or have a question about bed bugs, Dr. Ashbrook can be contacted at ashbrook@agcenter.lsu.edu. After the presentation, OCDD discussed the status of the new Employer’s Manual. As you may know, the Self-Direction Stakeholder Group, along with OCDD representatives, has been meeting for quite some time on revising this handbook to be more effective and supportive of Self-Direction Employers. A lot of work has gone into revamping the handbook to be more effective and meet our needs as Employers. There are still some things that need to be done to finalize it, but the bulk of the work is done, and the Stakeholder Group is now weighing in on the next priority(ies) to work on. Much thanks to everyone at OCDD for their hard work, support and consideration of the Stakeholders’ input on this important effort. If you are interested in becoming a part of the Stakeholder Group, you can email OCDD-HCBS@la.gov and use the SUBJECT: Self-Direction Stakeholder Group. The group meets monthly and is currently working on the 2026 calendar. The next Employer’s meeting will be held in June, date to be announced. For more information on Self-Directed Waiver Services for Developmental Disabilities, go to https://ldh.la.gov/medicaid/self-direction.
Disability Awareness is about recognizing the value, dignity, and contributions of people with disabilities in every part of society. It encourages communities to move beyond stereotypes and focus on accessibility, inclusion, and respect. According to theWorld Health Organization, more than one billion people worldwide live with some form of disability. Disability can affect individuals physically, intellectually, emotionally, or developmentally, and every person’s experience is unique. Disability awareness helps create environments where people with disabilities can participate fully in school, work, and community life. Awareness campaigns promote understanding of the barriers many individuals face, such as inaccessible buildings, communication challenges, or social stigma. By educating the public, these initiatives help remove those barriers and encourage inclusive attitudes. In the United States, laws such as the Americans with Disabilities Act and the Individuals with Disabilities Education Act protect the rights of individuals with disabilities. These laws ensure equal access to education, employment, transportation, and public spaces. They also provide supports like individualized education programs (IEPs), assistive technology, and accommodations that allow people to thrive. Disability awareness also emphasizes person-first thinking, seeing the individual before the disability. Instead of focusing on limitations, communities are encouraged to highlight strengths, talents, and the unique perspectives people with disabilities bring to society. Inclusive schools, workplaces, and recreational spaces benefit everyone by fostering empathy, collaboration, and innovation. When communities commit to disability awareness, they help build a society where everyone belongs. Simple actions, learning respectful language, supporting accessibility initiatives, and listening to the voices of people with disabilities, can make a meaningful difference. By continuing to educate ourselves and advocate for inclusion, we move closer to a future where all individuals are valued and given equal opportunities to succeed.
By Kristine Dauzat, Public Relations Manager
Building a More Inclusive Community
By Arita Bohannan, Councilwoman
In Jefferson Parish, inclusion is no longer just a concept, it’s a commitment. And at the heart of that commitment is Council woman Arita Bohannan, whose passion for inclusive play is deeply personal. Her advocacy began with love. Councilwoman Bohannan’s nephew, Anthony, was born on the autism spectrum. Through Anthony, she witnessed firsthand how traditional playgrounds can unintentionally exclude children with disabilities. Determined to create spaces where every child feels seen, valued, and included, she discovered the work of Unlimited Play, a nonprofit dedicated to designing fully inclusionary playground environments. Inspired, the Bohannan family helped fund the creation of “Little Hero’s Playground” in Waynesville, Missouri , a tribute to the community where her father was stationed and where her husband, Brad Bohannan, attended school. That experience ignited a larger vision: bringing inclusive play home to Louisiana. Anthony’s Missing Pieces: A First for Louisiana Back in her hometown of Kenner, Councilwoman Bohannan turned vision into action. At Miguez Park, in the very neighborhood where she grew up, she spearheaded the creation of Anthony’s Missing Pieces, the first fully inclusionary playground of its kind in Louisiana. Funded through the Bohannan family’s charitable contributions, support from local civic-minded trusts, and partnership with the City of Kenner, the playground quickly became more than a park. It became a statement: Inclusion is intentional. Belonging is designed. Access matters. Families from across the region began traveling to Kenner to experience a space where children of all abilities could play side by side, without barriers. Tripp's Treehouse: Louisiana’s Largest Inclusion Playground When elected to the Jefferson Parish Council, Councilwoman Bohannan expanded her mission parish-wide. At Lafreniere Parkin Metairie, she led the transformation of a well-used playground into Louisiana’s largest fully inclusionary playground, affectionately named Tripp’s Treehouse, a nod to the majestic oak canopy that defines the park. Since opening this summer, Tripp’s Treehouse has become the largest and most subscribed inclusion playground in the state. It has drawn families from across Louisiana and beyond, and has been featured in educational news coverage and nationally on Grey Media’s Investigate TV for its leadership in inclusive recreation. More than equipment, the playground represents a policy shift, a move toward designing public spaces where accessibility and inclusion are foundational, not an afterthought. Looking Ahead: A Coastal Vision at Laketown Councilwoman Bohannan’s work is far from finished. Her next project is a beautifully designed inclusionary playground at Kenner’s Laketown, inspired by Louisiana’s unique coastal heritage. The park will feature authentic local imagery created by a renowned Jefferson Parish artist, blending art, culture, and accessibility into a living, interactive masterpiece. The development coincides with the redevelopment of the northernmost section of Williams Boulevard and the adjacent Laketown Amphitheater, positioning the area as a destination for families of all abilities. This isn’t just about playgrounds. It’s about reshaping how communities think about inclusion. A Model for Communities Across Louisiana Councilwoman Bohannan’s work demonstrates what happens when personal experience fuels public service. By weaving advocacy into infrastructure, she is helping to normalize inclusion in everyday spaces. For families of children with disabilities, including those navigating sensory needs, mobility challenges, or communication differences, these playgrounds are more than recreation. They are safe spaces. Community spaces. Belonging spaces. As Louisiana continues to move toward greater awareness and accessibility, the work happening in Jefferson Parish stands as a powerful example: When inclusion is intentional, everyone benefits.
Building a Louisiana Where Every Child Belongs
Louisiana continues to strengthen its commitment to children and adults with disabilities by expanding Medicaid services that support health, independence, and family stability. As we move into 2026, the Louisiana Department of Health (LDH) has introduced updates and improvements that make it easier for families to access the care and resources they need. Below is a family-focused overview of what’s new, what’s improved, and what families should know in 2026.
Updates to Medicaid Services for Individuals With Exceptionalities
Expanded Access to Home- and Community-Based Services (HCBS) Louisiana has continued expanding programs that help individuals with disabilities live successfully at home and in their own communities. Streamlined eligibility reviews for waiver programs, reducing paperwork and shortening processing time for families. Greater care coordination between schools, therapy providers, and Medicaid case managers. Increased availability of respite services, helping caregivers get needed breaks while ensuring their loved one is safe and supported. Programs impacted: Children’s Choice Waiver Supports Waiver Community Choices Waiver Residential Options Waiver (ROW) New Opportunities Waiver (NOW) Autism and Developmental Disability Support Enhancements Families often face long waits for autism-related services. Louisiana has made progress to close that gap. Additional Applied Behavior Analysis (ABA) providers enrolled in Medicaid statewide. Improved coverage for early identification, including developmental screenings at younger ages. Expanded access to family training on communication, behavior supports, and navigating systems, at no cost to Medicaid families. Mental and Behavioral Health Improvements Recognizing the increasing need for emotional and behavioral support for children with disabilities, Medicaid has expanded mental health offerings. Telehealth appointments for therapy and psychiatry now available without prior authorization in most cases. Stronger collaboration with schools to support students with IEPs and 504 plans. Additional youth and family-centered services under the Coordinated System of Care (CSoC), including wraparound supports. Easier Enrollment and Renewal Process Medicaid renewals have been challenging for many families in previous years. In 2026, LDH is simplifying the system. What families will notice More automatic renewals when LDH can verify eligibility electronically. Text and email reminders before deadlines. Improved online account features so families can update information or upload documents from any device. Support for Medically Fragile Children Children with complex medical needs rely heavily on Medicaid services. LDH has strengthened these supports. Expanded access to Private Duty Nursing (PDN) hours based on medical need. More durable medical equipment (DME) vendors approved statewide. Updated policies that help children stay at home instead of entering institutional care settings. Transportation Improvements for Medical Appointments The Non-Emergency Medical Transportation (NEMT) program remains a vital resource for families without reliable transportation. A redesigned scheduling system to reduce long wait times. Real-time ride tracking through an updated mobile app. Expanded training for drivers supporting children and adults with behavioral or communication challenges. Enhanced Support for Youth Transitioning to Adulthood Louisiana is investing more in helping youth with exceptionalities move into adult life. Extended Medicaid support through transition planning. Increased behavioral health and employment readiness services up to age 22. More partnership programs connecting families with vocational rehabilitation (LRS), independent living centers, and community agencies. Better Access to Information & Help for Families LDH has improved communication and navigation assistance so families don’t feel alone. Families can now access: A clearer, more user-friendly Medicaid Services website https://ldh.la.gov/medicaid/medicaid-services Multilingual resources New statewide “Family Navigation” phone support to help parents locate the right programs.
What's New with LA Medicaid In 2026, Medicaid has returned to normal annual eligibility renewals after the pandemic-era “continuous coverage” protections ended. This means families must again complete renewal forms and update their information each year to keep coverage active. In Louisiana, many individuals receive services through the Healthy Louisiana managed care program, where members are enrolled in health plans that coordinate care and services. Families should carefully watch for renewal notices in the mail, respond quickly to any requests for information, and make sure their contact details are up to date. Missing paperwork is now one of the most common reasons people lose Medicaid coverage, even when they still qualify. Learn more here.
Louisiana Medicaid Members!
Youth Toolkit to Supplement Security Income
The Social Security Administration now offers a comprehensive Youth Toolkit designed specifically for Supplemental Security Income (SSI) recipients ages 14–17 and their families. This resource helps transition-aged youth better understand important SSI policies and the supports available as they move toward adulthood. Inside the toolkit, families will find clear guidance on the age-18 redetermination process, how to appeal if benefits are discontinued, and how earnings may affect eligibility at age 18. It also explains valuable work incentives, supports for entering the workforce, SSI rules around higher education funds, and the benefits of opening an ABLE account. With practical tools and easy-to-understand information, the Youth Toolkit empowers families to navigate this critical transition with confidence and clarity.
From Brain Injury to Beautiful Art
On August 8, 2005, a sunny afternoon in Houston, Texas, changed the course of one teenager’s life forever. Fifteen-year-old BJ Smith climbed onto an all-terrain vehicle (ATV) without a helmet for what was meant to be a carefree ride with his cousin. Within moments, the ride ended in a devastating crash that left BJ with a severe traumatic brain injury (TBI). The days that followed were filled with uncertainty. BJ spent 30 days in a coma and suffered a stroke during his recovery. Doctors focused on stabilizing his condition and preserving his life. His family focused on something equally powerful, hope. The injury left BJ with permanent challenges. He lost 60 percent of his vision and spent six months hospitalized and in intensive rehabilitation. Tasks that most people take for granted suddenly had to be relearned from the beginning. BJ had to relearn how to walk, talk, dress himself, and feed himself. For his family and medical team, the early goal was simple: survival. But what unfolded over the next two decades would become a story of resilience, community support, and the extraordinary potential of recovery. A Full-Circle Moment On August 8, 2025, exactly twenty years after the accident, BJ and his mother returned to Memorial Hermann Hospital in Houston. This time, they were not returning as patients and caregivers. They returned as a son and mother expressing gratitude to the neuro-rehabilitation team who helped save his life. For the medical professionals who once cared for him in critical condition, seeing BJ standing, speaking, and thriving served as a powerful reminder of why their work matters. Sharing a Story That Educates and Inspires Today, BJ and his mother travel across Louisiana sharing their story of brain injury recovery, perseverance, and life after trauma. Together, they speak with students, healthcare professionals, and community members about the long-term impact of traumatic brain injury and the importance of rehabilitation, family support, and adaptive opportunities. They lecture annually at several higher-education institutions, including: LSU Health Sciences Center New Orleans – School of Occupational Therapy University of Louisiana at Lafayette – College of Nursing South Louisiana Community College Through these presentations, BJ offers a perspective that cannot be found in textbooks, the lived experience of recovery. Their message to future healthcare professionals is clear: recovery does not end when a patient leaves the hospital. Healing continues for years, sometimes decades, and it often involves creativity, community support, and determination. Art as Rehabilitation and Purpose During the early stages of rehabilitation, BJ discovered something unexpected that would change the trajectory of his life: art. What began as a therapeutic activity during recovery gradually became a passion and eventually a career. Art offered BJ a way to express himself, rebuild motor skills, and reconnect with the world around him. Today, BJ is a full-time artist whose vibrant work reflects movement, color, and hope. His signature tool, known as the Art Spinner, allows paint to move across the canvas in dynamic patterns, creating energetic pieces that capture the spirit of recovery. BJ frequently demonstrates his art in community settings, bringing creativity and joy to people of all ages. In 2025, he shared his artwork with patients at Baton Rouge Rehabilitation Hospital and has since visited assisted living communities, nursing homes, and community art centers. His work has also been showcased at St. Pierre’s Center for the Arts in Lafayette. For BJ, art became more than a creative outlet. Art became rehabilitation. Art became connection. Art became purpose. Strength Through Adaptive Sports BJ’s determination extends beyond the art studio. Through Baton Rouge Rehabilitation Hospital’s adaptive sports program, BJ became a member of the Cajun Crushers, a team of athletes with disabilities who compete in adaptive track and field events. He has participated in the Governor’s GUMBO Games, an event celebrating athletes with disabilities across Louisiana. BJ earned gold medals in: Shot Put Javelin Discus Adaptive athletics have provided BJ with another avenue for building strength, confidence, and community. Advocacy and Awareness BJ and his mother also serve as ambassadors for the Brain Injury Association of Louisiana, where they help raise awareness about traumatic brain injury prevention, recovery, and long-term support. Each year, BJ demonstrates his artwork at the organization’s statewide conference, where his story resonates with survivors, families, and healthcare professionals alike. His journey has also reached a wider audience through media. BJ was featured on Art Rocks! on Louisiana Public Broadcasting, where he shared his creative process and personal story with viewers across the state. Looking Ahead Today, BJ continues to live with the lasting effects of his brain injury, but his life is defined not by limitations, but by possibility. He remains passionate about connecting with people through art, education, and advocacy. His dream for 2026 is simple yet powerful: to reach as many people as possible and demonstrate that life after brain injury can still be vibrant, meaningful, and impactful. Twenty years ago, survival was the goal. Today, inspiration is the mission.
A 20-Year Journey of Brain Injury Recovery, Advocacy, and Creative Purpose
by Kim Smith, Parent Advocate
By Ash Rowell, Barber
For many families, something as routine as a haircut can feel overwhelming. Children with disabilities, sensory sensitivities, or past distressing experiences may associate haircuts with anxiety, fear, or even trauma. But in the right environment, with the right approach, a haircut can become something entirely different, an experience rooted in patience, dignity, and trust. One Louisiana barber is changing the narrative. Specializing in working with children, including those with disabilities and sensory sensitivities, this barber centers every appointment on calm, predictability, and compassion. Instead of rushing through a service, the focus is on meeting each child exactly where they are, honoring their communication style, sensory preferences, and emotional needs. For families like Jasper’s, this approach has been life-changing. Jasper, who has Epidermolytic Ichthyosis (EI), previously struggled to tolerate haircuts. Past attempts had ended in distress and disappointment. His family arrived feeling defeated, unsure whether another appointment would end the same way. But by slowing down the process, removing pressure, and prioritizing connection over perfection, something remarkable happened: Jasper completed his haircut at his own pace. There were choices. There were breaks. There was patience. Most importantly, there was respect. Moments like these are about far more than hair. They are about autonomy. Confidence. Trust. They are about a child leaving proud of themselves, and a parent leaving with relief, hope, and sometimes tears. What has proven most effective is simple, yet powerful: Slowing down Offering clear, predictable steps Allowing movement and breaks Giving children meaningful choices Prioritizing connection over perfection When children feel safe and in control, haircuts can shift from overwhelming to empowering. Families deserve to know their child is capable. Their child is deserving of dignity. Their child is worthy of care that honors who they are. To view the barber’s work, portfolio, and read over 500 reviews from families, visit: smashblendzLA.booksy.com Because sometimes, the smallest milestones, like a haircut , are actually the biggest victories.
Safe Haircuts for All
My role extends beyond the classroom. I work closely with families, general education teachers, and support staff to ensure that each student receives consistent support across their learning environment. Through collaboration and open communication, we create a cohesive system that helps students feel understood, encouraged, and capable of reaching their potential. One accomplishment I am particularly proud of is helping turn around a struggling special education program. By rebuilding systems, strengthening collaboration among staff, and focusing on a more inclusive and student-centered culture, we were able to transform the experience for many students and families. Our goal was simple but powerful: ensure that every student feels seen, valued, and supported in their learning journey. The impact of this work is reflected in the feedback we receive from families. Parents often share that their children now feel safer, more motivated, and more confident at school. That sense of belonging carries beyond the classroom and positively influences their experiences at home as well. When students believe in themselves and feel supported by the adults around them, their willingness to learn and grow increases dramatically. For me, strong relationships are the foundation of effective teaching and leadership. Establishing consistent routines, using differentiated instruction, modeling skills explicitly, and reinforcing positive behaviors help students build both academic and social confidence. I also prioritize collaboration with colleagues and rely on data-driven decision making to guide instruction and monitor progress. Student engagement grows when learning feels relevant and meaningful. Incorporating student interests, offering choices in learning activities, and celebrating growth, no matter how small,have made a significant difference in helping students stay motivated and invested in their education. Supporting students also means supporting their families. I encourage families to take advantage of school-based resources such as IEP teams, counselors, and intervention programs. Community organizations can also provide valuable services like tutoring, therapy, and family support. Staying connected with teachers, attending workshops, and engaging with parent advocacy groups can empower families to navigate the educational system more confidently. Families should always remember that they are not alone. There is a network of educators, advocates, and community resources ready to help ensure every child has the opportunity to thrive. Building an inclusive culture requires intention, collaboration, and heart. When educators lead with purpose, we create learning environments where every student has the chance to feel valued, capable, and inspired to succeed. As educators, we have the responsibility to look beyond academics and recognize the whole child. Many students face challenges that are not always visible in the classroom, and meeting those needs requires patience, understanding, and compassion. When schools prioritize emotional safety and belonging alongside academic growth, students are more willing to take risks, ask for help, and develop resilience. Creating spaces where students feel respected and supported allows them to discover strengths they may not have realized they possessed. Ultimately, the work of supporting students with diverse learning needs is both a challenge and a privilege. Every step forward, whether it is a student mastering a new skill, advocating for themselves, or simply gaining confidence in their abilities, is a reminder of why this work matters. When educators, families, and communities work together with a shared purpose, we create opportunities for students not only to succeed in school but to thrive in life.
By Kayla Halstead, Lead SPED Teacher
At Andrew Jackson Middle School in Chalmette, Louisiana, inclusive leadership is more than a philosophy, it is part of the daily work happening in classrooms and hallways. As the Lead Special Education Teacher and English Language Arts teacher, I focus on providing individualized instruction, accommodations, and advocacy so that every student has meaningful access to grade-level curriculum while developing the skills and confidence needed to succeed both academically and personally.
Leading with Purpose: Building an Inclusive Culture
awareness Calendar
Families often hear about Medicaid’s Developmental Disability Waivers, but many don’t realize that being found eligible for OCDD services may qualify them for additional financial support. Louisiana’s Human Service Districts and Authorities offer two key programs: Flexible Family Fund (FFF): Provides a $258 monthly stipend for families of children under age 18 with significant disabilities. Applications are available through your local Human Service District or Authority. Individual & Family Support (IFS) Fund: Available for children and adults, this program helps meet needs that support individuals living at home and in the community. Funds may cover respite, caregiving support, medical supplies/equipment, or crisis assistance. Funding cannot be used for services already covered by Medicaid, insurance, or other resources. These programs can make a meaningful difference by helping families remain stable and improving quality of life during times of need. To find your regional Human Service District or Authority, visit ldh.la.gov/page/134 and scroll to the map at the bottom of the page.
Financial Assistance Through Human Service Districts & Authorities
Developmental Disabilities Awareness Month Each March, Developmental Disabilities Awareness Month celebrates the contributions of individuals with developmental disabilities while promoting inclusion and equal opportunities. Communities nationwide work to increase understanding and ensure individuals with disabilities are supported to live, work, and thrive in their communities. Epilepsy Awareness Day Epilepsy Awareness Day shines a light on the millions of individuals and families affected by epilepsy while promoting understanding, safety, and support. Increased awareness helps reduce stigma and empowers communities to respond safely and compassionately to seizures. Down Syndrome Awareness Day World Down Syndrome Day, observed each year on March 21, celebrates the lives, accomplishments, and contributions of individuals with Down syndrome. The day promotes inclusion, advocacy, and greater understanding so individuals with Down syndrome can live, learn, work, and thrive in their communities.
MArch
"I thought the training was helpful and had a lot of knowledge and information. Thank you." -Parent Participant
Families Helping Families of Greater New Orleans provides parents/caregivers, individuals with disabilities and professionals many training opportunities every month of the year. Below are some of the highlighted training. Planning for Adulthood: Your High School IEP Questions Answered - You have likely been thinking about and planning for the transition process from high school to adult life for your child for a long time! Learn more about how the IEP and transition supports in high school can help your child prepare for adult life. The Bridge from High School to Postsecondary Services - In this webinar, we will assist you to understand the Individual Transition Plan (ITP) process as it pertains to postsecondary education and other related services. We will also provide an overview of programs and resources available to your child entering postsecondary education or employment. Advocacy 101 -As parents or advocates of individuals with disabilities, knowing how to advocate effectively is critical. Advocacy is defined as taking action in support of or opposition to a cause or issue. Advocacy can be done through education, outreach, and grassroots organizing. Here, we will provide you with some of the basics on how to become an effective advocate. The ABC’s of ESY (extended School Year) Services -Did you know that data collected during the holidays often determine if your child will qualify for ESY (Extended School Year) Services? This training provides an overview of the ESY process for children with disabilities, including how children qualify and why, in many circumstances, the school uses the holiday breaks to determine if a child will qualify for ESY.
In addition to the highlighted training opportunities, we offer several more. All trainings are FREE and relevant for parents, caregivers, and professionals working with school-aged children. For dates, times, and registration links to any of our online classes, visit the Training Calendar on our website. Our calendar is packed with interesting and informative training opportunities!
The primary purpose of the Independent Futures That Work project is to build the competence and confidence of young adults with disabilities to access independent living and employment services so they can more successfully transition from the youth entitlement system to the adult eligibility system. Our Resource Center will also help family members and professionals improve their capacity to support these young adults with disabilities on their journey. To learn more and find resources scan the QR Codes above or visit Families Helping Families of Greater New Orleans website.
By Kristine Dauzat
Voices of Families: Your Story Matters
Every family’s journey is unique. At Families Helping Families of Greater New Orleans, we believe the experiences of parents, caregivers, and individuals with disabilities are powerful. Your voice helps shape programs, strengthen advocacy, and support other families walking a similar path. When families share their stories, they help create change, build understanding, and remind others that they are not alone. Why Your Voice Matters Your experiences can help: • Guide other parents navigating the special education system • Improve services and resources for families across Louisiana • Raise awareness about disability inclusion and advocacy • Inspire hope for families just beginning their journey What Parents Are Saying “I appreciated learning that every school district has its own Special Education Advisory Council (SEAC or SEAP). This information helps parents understand where they can have a voice and be part of improving services for students with disabilities.” -Parent Participant “I loved the check-in poll during the presentation. It was quick, engaging, and helped participants feel included in the conversation.” - Parent Participant “I truly enjoyed the topic and gained valuable insight that will help me better support my child and advocate within our school district.” - Parent Participant Share Your Story With Us We invite parents, caregivers, and individuals with disabilities to share their experiences. Your story could help another family find the support they need. Whether it’s a small victory, a lesson learned, or a journey of advocacy, your voice can make a difference. Email your story to: kdauzat@fhfofgno.org
The Louisiana Parent Training and Information Center (LaPTIC) is a program of Families Helping Families of GNO and a grant from the US Department of Education; Office of Special Education (OSEP) as Louisiana's official and only statewide federally funded Parent Training and Information Center.
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Any information provided by Families Helping Families of Greater New Orleans (FHF) and/or Louisiana Parent Training and Information Center (LaPTIC), its staff, and/or its volunteers is intended for informational and educational purposes only. Any information expressed or implied is not intended nor should be construed as legal, medical, or other professional advice. FHF and/or LaPTIC does not render legal, medical, or professional advice or recommendations; nor is legal, medical, or other professional advice implied by any information given. Any information provided should not replace consultations with qualified legal, educational, healthcare, or other professionals to meet individual or professional needs. Reference to any program, service, therapy, or treatment option does not imply endorsement by FHF and/or LaPTIC or by its organizational staff/members and should not be construed as such.
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700 Hickory Avenue Harahan, LA 70123 504-888-9111 800-766-7736 504-353-2350 fax info@fhfofgno.org fhfofgno.org