Request a Camera in Your Child's Special Education Classroom P.26
What's Going ON?
COVER STORY
ISSUE 43
HOW TO
Exceptional
Free Webinars and Training P.13
MAGAZINE
JULY | AUG | SEPT 2024
Farewell, and Thank You for the Memories P.04
TIMES
A FOND farewell
From Challenges to CEO: How My Non-Speaking Son with Autism Built a Thriving Delivery Business P.22
38 How Did Our State Perform? 2024 IDEA Implementation Results Revealed!
19 Working Through Conflict on the Job
15 Independent Futures that Work
08 New Guidelines for Autism Treatment: What You Need to Know
3rd Quarter JULY | AUG | SEPT 2024
BOARD OF DIRECTORS Jo Ann D. LoRusso, Ph.D. Gregory Brenan, CPA, CCIFP, CGMA Denise Barrera, MPH, MSW Debra Dixon M.Ed.+30 Ashley Bourg Michelle Archambault, CPA/PFS
04 Farewell, and Thank You for the Memories
06 Smart Summer Routines for Kids and Teens
13
14 Youth Virtual Hangout
CONTENTS
MISSION The Mission of Families Helping Families of Greater New Orleans is to educate and connect children and adults with disabilities, and their families to resources, services, and supports to attend school, work, and thrive in their communities.
OUR TEAM executive director DALE LIUZZA dliuzza@fhfofgno.org - Ext. 207 director of training SHARON BLACKMON sblackmon@fhfofgno.org - Ext. 204 director of public relations BEBE BODE bbode@fhfofgno.org - Ext. 226 peer support specialist NICOLE DESROCHE ndesroche@fhfofgno.org - Ext.218 administrative assistant LIZ DUMAS ldumas@fhfofgno.org - Ext. 202 director of peer-to-peer support LAURA S. NATA lsnata@fhfofgno.org - Ext. 209 community resource specialist STEVEN NGUYEN snguyen@fhfofgno.org - Ext. 212 community outreach specialist KRISTINE DAUZAT kdauzat@fhfofgno.org - Ext. 208 peer support specialist JESSICA DE LA VINA jdelavina@fhfofgno.org - Ext. 217
24 Senate Report Exposes Shocking Abuse in Youth Treatment Facilities
33 DEC 40th Annual International Conference on Young Children with Disabilities & Their Families
28 Awareness Calendar
16 I Want to Know About… SSA, SSI & SSDI
12 Get Ready for a Busy Hurricane Season!
Exceptional Times
22 COVER STORY: From Challenges to CEO: How My Non-Speaking Son with Autism Built a Thriving Delivery Business
18 Healthy Blue Back to School Supply Giveaway
40 Louisiana School Finder | Recorded Training
10 Celebrating 50 Years of SSI: What You Need to Know About the Upcoming Changes
26 How to Request a Camera in Your Child’s Special Education Classroom
700 Hickory Avenue Harahan, LA 70123 504.888.9111 | 800.766.7736 info@fhfofgno.org | fhfofgno.org
Dear Families, Colleagues, and Friends, As I sit down to write this letter, my heart is filled with a mix of emotions. After 30 incredible years at Families Helping Families of Greater New Orleans, it is time for me to bid farewell and step into the next chapter of my life, or as Tay Tay would say – the next era. This decision has not been an easy one, as this place and the wonderful people I’ve met here have been such a significant part of my journey. Reflecting on the past three decades, I am overwhelmed with gratitude. It has been an honor and a privilege to work alongside such a dedicated team and to serve so many amazing families. Together, we have faced challenges, celebrated triumphs, and built a community that stands strong in support of individuals with disabilities. To our families, I want to express my deepest appreciation. Your resilience, strength, and unwavering love for your children have been a constant source of inspiration. Thank you for allowing me to be a part of your lives, for trusting us with your stories, and for teaching me the true meaning of courage and hope. Each one of you holds a special place in my heart, and I will cherish the memories we’ve made together. To our partners and supporters, your generosity and belief in our mission have enabled us to expand our services and reach more families in need. Your contributions have made a tangible difference, and I am continually awed by your commitment to making our community a better place for everyone. Your support has been invaluable, and I am eternally grateful for your kindness and vision. To my team, you have been more than just coworkers – you have been my second family. You are the heart and soul of this center. Your passion, hard work, and unwavering dedication have been the driving force behind our achievements. Your commitment to our mission, your kindness, and your tireless efforts have made every day at the center meaningful and fulfilling. We have shared laughter, tears, late nights, and early mornings, and I am grateful for each moment. It has been a privilege to work with such an extraordinary team. To my current and previous FHF network partners, our shared vision of creating an inclusive society has brought us together and strengthened our resolve. Each of you has played an integral role in making our collective mission a reality. I am deeply grateful for your partnership and dedication to the disability community. To the Parent Training & Information Center Network and All of OSEP-funded projects and project officers, together we have built programs, advocated for policies, and created a network of support that extends far and wide. It’s through our hard work, creativity, and perseverance that we became successful. Each one of you brought unique talents and perspectives to our mission, and it has been an honor to collaborate with such a dedicated group of individuals. Your tireless efforts have touched countless lives, providing essential resources, support, and hope to families navigating the challenges of a disability. Meeting each of you has been one of the greatest joys of my career. I will forever cherish each trip to Washington DC and every legislative reception. I will forever be grateful for the late Paula Goldberg, who dedicated her life to the parent center movement. Your influence is part of my legacy, and your legacy is forever woven into the fabric of our work. I will carry your memory with me every day. To my original mentors, Rose, Carol, & Brenda, from the very beginning, your belief in my potential and your unwavering support have been the bedrock of my career. You have been role models, guiding lights, and sources of inspiration. Your wisdom has helped me navigate the complexities of our work, and your encouragement has given me the confidence to be successful. Some of the biggest lessons learned were taught through your everyday life. The Dignity of Risk, Always Presume Competence, and Everyone Is Just One Accident Away From Being Disabled, has become my mantra. To Jamie, you taught me the importance of empathy, resilience, and integrity. You challenged me to think differently, to persevere through challenges, and to strive for excellence in all that I do. I am profoundly grateful for the countless guidance and feedback you provided me when I needed it most. We didn’t always agree, but we always respected each other. To my dear husband Mike, your steadfast love and support have been the foundation upon which I have built my career. Your understanding, patience, and encouragement have made it possible for me to pursue my passion. You have been my sounding board, my cheerleader, and my anchor through all the highs and lows. Thank you for believing in me and for standing by my side every step of the way, I am so grateful for your love and partnership. To this day, I remember one of your first bits of advice – dress for the job you want, not the one you have. To my amazing children, Megan and Brooke, you have been my inspiration and my joy. Your resilience has taught me so much about what it means to care deeply and to strive for a better world. You have always understood the importance of my work, even when it meant long hours and sometimes missing out on family time. Your love, patience, and understanding have been a constant source of motivation for me. Thank you for your endless support and for being my greatest champions. To my family and friends, thank you for your unwavering support throughout my career. Your encouragement and understanding have been invaluable, especially during the toughest times. I am grateful for our countless memories, the deep conversations, and understanding my passion for my work. To my adversaries, throughout my career, we have often stood on opposite sides of issues, advocating passionately for our respective beliefs and policies. I hope that our disagreements challenged you and helped you understand my perspective and philosophies around the support of individuals with disabilities. Each and every person in Louisiana, regardless of the severity of their disability, has the right to meet their full potential, and live a happy, meaningful life, as independently as possible. Though I am stepping away from this professional role, my heart will always be with each of you. Each Caleb, Jaquel, Craig, Lillian, Michael, Sam, Melissa, Seth, Ernie, Stephan, Bradley, and Kevin I’ve met along the way has left a permanent footprint in my heart. Thank you for the memories, the lessons, and the love. I will forever cherish each of you. With heartfelt gratitude and warmest wishes, Mary Jacob
by Mary Jacob
Farewell, and Thank You For the Memories
Continued p.36
Keeping a consistent sleep schedule is crucial for overall health. During summer, it’s easy to let bedtimes slip, but this can mess up a child's internal clock and affect their mood and behavior. Encourage a regular bedtime and wake-up time, and create a calming bedtime routine to ensure they get enough rest.
Summer is a time for fun and relaxation, but it's also a great chance to keep healthy habits. Having a good summer routine can help kids especially those with developmental disabilities and ADHD, stay on track. Here are five simple tips to help make a balanced and fun summer routine.
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Daily Physical Activity
Healthy Sleep Routines
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Summer usually means a break from the strict school routine, but keeping some structure can help kids, especially those with ADHD, feel secure. Structured free time means having a predictable schedule for activities. This could include a morning routine, set times for play, and evening wind-down periods. Predictability helps reduce anxiety and improves behavior.
Social interaction is important for kids' emotional and social growth. Regular playdates or group activities help kids develop social skills, build friendships, and improve communication. For children with developmental disabilities, structured social activities like group therapy or special interest clubs can be especially helpful.
Structured Free Time
Smart Summer Routines for Kids and Teens
Social Interaction and Playdates
Engaging in Educational Activities
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By following these smart summer routines, kids and teens can have a balanced and fun summer, making it easier to transition back to school in the fall.
Regular exercise is important for all kids and teens, especially those with developmental disabilities and ADHD. Physical activity can help improve focus, reduce anxiety and depression, and make kids feel better overall. Activities like swimming, biking, hiking, or even daily walks are great options. For younger kids, playtime in the park or backyard can be very beneficial.
Keeping the brain active during the summer helps prevent the "summer slide," which is the loss of academic skills over the break. This can be done through fun and educational activities like reading programs, science experiments, or educational apps. Choosing activities that interest your child can make learning enjoyable and keep them mentally stimulated.
ABA has faced some controversy, with some self-advocates expressing concerns about negative experiences and the treatment's impact on people with autism.
The new ABA guidelines are designed to ensure that ABA is delivered consistently and at high quality across the country. They aim to help providers, insurers, regulators, and families understand what effective ABA treatment looks like and how it should be implemented. Following these guidelines aims to improve the quality of life for individuals with autism and help them achieve their fullest potential.
New Guidelines for Autism Treatment: What You Need to Know
For the first time in a decade, new guidelines have been released for the most widely-used autism treatment, Applied Behavior Analysis (ABA). The Council of Autism Service Providers (CASP), which represents many autism service providers, has published the third edition of the Applied Behavior Analysis (ABA) Practice Guidelines for the Treatment of Autism Spectrum Disorder. These guidelines are meant to help insurers, regulatory bodies, consumers, practitioners, and other stakeholders understand and provide quality ABA services. “ABA is a highly effective treatment for autism. But it has to be correctly implemented at the highest quality,” said Lorri Unumb, chief executive officer of CASP. “These guidelines are key to achieving that.” The new edition reflects many changes in the field since the last edition was published in 2014. These changes include the increased use of state licensure for behavior analysts, the establishment of medical billing codes for ABA, and the expansion of ABA insurance coverage mandates. What’s New in the Guidelines? The updated guidelines cover a wide range of topics, including: Training and Certification: Information on how ABA practitioners should be trained and certified. Staffing and Delivery Models: Guidelines on how to properly staff and deliver ABA services. Treatment Implementation: Best practices for implementing ABA treatment. Outcome Measures: How to measure the effectiveness of ABA treatment. State and Federal Policies: Relevant laws and regulations. Why Are These Guidelines Important? Unumb explained that regulators and insurers use these guidelines to understand what ABA should look like when approving services. Families can also use the guidelines to find quality providers. “Just like a heart catheterization shouldn’t look different in North Dakota than it looks in New York, ABA should not look different from state to state — at least not on the basis of differing geography,” said Unumb. She added that while ABA should be consistent across locations, it is also important to remember that it must be individualized to meet each person's unique needs. How ABA is Delivered According to the guidelines, ABA can be provided at different levels of intensity depending on medical necessity. Treatment can last from a few months to several years, or even throughout a person's life. Services can be offered in various settings, such as clinics, homes, and community environments. Development of the Guidelines The new 88-page document is the result of a three-year process that involved reviewing the latest research and gathering input from over 60 behavior analysts. “We collected input from over 60 behavior analysts, extensively reviewed the latest research since version 2.0, and carefully deliberated on every word,” said Dr. Jane Howard, chair of the steering committee and co-founder of Therapeutic Pathways, an autism treatment center. Addressing Controversies ABA has faced some controversy, with some self-advocates expressing concerns about negative experiences and the treatment's impact on people with autism. Zoe Gross, director of advocacy at the Autistic Self Advocacy Network, said, “These guidelines don’t change our fundamental concerns about the philosophy behind ABA, the evidence base for ABA, how it is practiced, and its effect on autistic people.” Unumb noted that the guidelines are not intended to address these concerns directly, but emphasized that the third edition places a strong emphasis on shared decision-making and collaboration with consumers and caregivers.
Sources: Disability Scoop, The Council of Autism Service Providers.
continued p.33
This year marks a significant milestone: the 50th anniversary of the Supplemental Security Income (SSI) program. Created in 1974, SSI has been a lifeline for many individuals and families, providing financial support to adults and children with disabilities. As we celebrate this anniversary, it's also important to be aware of some upcoming changes to the program that could impact you or your loved ones. A Look Back at SSI SSI was established to help individuals with limited income and resources, particularly those who are elderly, blind, or have disabilities. Over the past 50 years, SSI has provided crucial support, helping to cover basic needs like food, clothing, and shelter. For many individuals and families, this program has been essential in ensuring their loved ones receive the care and support they need. What’s New for SSI? As we look forward to the next 50 years, the Social Security Administration (SSA) has announced some changes to SSI that aim to improve the program for individuals with disabilities. Here are the key updates you should know: Increased Benefits: One of the most significant changes is an increase in the monthly benefit amount. This adjustment aims to better align SSI benefits with the current cost of living, helping individuals and families manage their expenses more effectively. Resource Limit Adjustments: The SSA is also updating the resource limits, which determine eligibility for SSI. These limits have been stagnant for years, but the new changes will increase the amount of resources (like savings) that an individual can have while still qualifying for benefits. Earnings Exclusions: Another important change is the revision of the earnings exclusions. This means that individuals with disabilities who are working will be able to keep more of their earnings without it affecting their SSI benefits. This change encourages greater participation in the workforce and provides more financial stability for those who are able to work. Streamlined Application Process: The SSA is working to make the application process for SSI simpler and more accessible. This includes improvements to the online application system and better support for individuals and families navigating the process. Enhanced Support Services: There will also be an increase in support services for SSI recipients, including better access to case managers and resources to help individuals maximize their benefits and navigate other related programs. Congressional Bills Proposing Significant SSI Reforms In addition to these changes, two significant bills have been proposed in Congress that aim to bring further reforms to the SSI program: The SSI Restoration Act: This bill proposes several key changes, including increasing the resource limit, raising the monthly benefit amount, and updating the income exclusions. These changes are designed to bring SSI more in line with current economic realities and provide better support for individuals with disabilities. The Supplemental Security Income (SSI) Savings Penalty Elimination Act: This bill focuses on eliminating the penalties for saving, allowing individuals to save more money without jeopardizing their SSI benefits. This is crucial for families planning for future needs. Potential Negative Changes While many of the proposed changes aim to improve the SSI program, there are potential concerns to be aware of: Complex Implementation: The transition to new policies can sometimes be complex and lead to temporary confusion or delays in benefits. Individuals and families should stay informed and prepared for possible short-term disruptions. Eligibility Re-evaluations: As resource limits and earnings exclusions are adjusted, some individuals may find that their eligibility is re-evaluated. This could result in some people losing benefits if they no longer meet the updated criteria. Administrative Challenges: Streamlining the application process and enhancing support services are positive steps, but they require significant administrative changes. If not implemented effectively, there could be initial hiccups that might affect service delivery. Potential Budget Constraints: If the proposed increases in benefits and resources are not accompanied by adequate funding, there could be budget constraints that impact the overall effectiveness of the SSI program. What This Means for You and Your Family These changes and proposed reforms are designed to provide greater financial security and support for individuals with disabilities and their families. Here’s how they might impact you: More Financial Support: With increased benefits and updated resource limits, you or your family may receive more financial support, making it easier to cover essential needs. Encouragement to Work: If you or your child with a disability is able to work, the changes in earnings exclusions mean you can keep more of your income without losing SSI benefits. Easier Application Process: The streamlined application process means less hassle and quicker access to benefits, reducing the stress on you and your family. Better Access to Resources: Enhanced support services can help you better understand and utilize the benefits available, ensuring you get the most out of the SSI program. As we celebrate the 50th anniversary of SSI, it's clear that the program is evolving to better meet the needs of individuals with disabilities and their families. The upcoming changes and proposed reforms offer both potential benefits and challenges. On the positive side, increased benefits, updated resource limits, and a streamlined application process promise to provide more comprehensive support. However, the implementation of these changes may come with complexities, potential eligibility re-evaluations, and administrative challenges. Individuals and families should stay informed and prepared to navigate these changes, understanding that while there may be some initial disruptions, the overall goal is to enhance the SSI program’s effectiveness and sustainability. For more detailed information and updates, you can visit the official Social Security Administration website or contact your local SSA office. Sources: CNBC, Social Security Administration
Celebrating 50 Years of SSI: What You Need to Know About the Upcoming Changes
Our calendar is packed with interesting and informative training opportunities this quarter!
Get Ready for a Busy Hurricane Season!
By Families Helping Families Greater New Orleans The hurricane season starts on June 1 and ends on November 30. This year, the weather experts are saying we need to get ready for a lot of hurricanes. The NOAA National Weather Service forecasters at the Climate Prediction Center is forecasting a range of 17 to 25 total named storms (winds of 39 mph or higher). Of those, 8 to 13 are forecast to become hurricanes (winds of 74 mph or higher), including 4 to 7 major hurricanes (category 3, 4 or 5; with winds of 111 mph or higher). Forecasters have a 70% confidence in these ranges. "Severe weather and emergencies can happen at any moment, which is why individuals and communities need to be prepared today," said FEMA Deputy Administrator Erik A. Hooks. "Already, we are seeing storms move across the country that can bring additional hazards like tornadoes, flooding and hail. Taking a proactive approach to our increasingly challenging climate landscape today can make a difference in how people can recover tomorrow." Why So Many Hurricanes? There are a few reasons why we might have more hurricanes this year: Warm Ocean Water: The Atlantic Ocean is really warm right now. Hurricanes love warm water because it gives them energy. La Niña: This is a weather pattern that happens in the Pacific Ocean. When La Niña is around, it helps more hurricanes form in the Atlantic. Less Wind: There will be less wind in the Atlantic to break up storms. This means storms can grow bigger and stronger. Weak Trade Winds: These are winds that usually blow across the Atlantic and can stop storms from getting too strong. This year, they are not as strong, so more storms might form. What Should We Do? Since we might have a lot of hurricanes, it's important to be prepared. Here are some tips: Know Your Evacuation Route: Find out where you need to go if you have to leave your home. This is called an evacuation route. Pack an Emergency Kit: Have a kit ready with things you might need if a hurricane comes, like water, food, and medicine. Stay Informed: Watch the news or listen to the radio to know if a hurricane is coming your way. Understanding Contraflow Contraflow is a way to help people evacuate faster when a big storm is coming. It means they change the direction of traffic on the highways so all lanes go out of the city, helping everyone leave quickly and safely. Read the article, "How can Louisiana evacuate as hurricanes intensify rapidly? Don't wait for contraflow.” Let's all stay safe and be ready for this busy hurricane season!
In addition to the highlighted training opportunities, we offer several more. All classes are FREE and relevant for parents, caregivers, and professionals working with school-aged children. For dates, times, and registration links to any of our online classes, visit the Training Calendar on our website. Louisiana families needing accessibility accommodations to attend one of our webinars, please contact our Director of Training, Sharon Blackmon at sblackmon@fhfofgno.org.
The primary purpose of the Independent Futures That Work project is to build the competence and confidence of young adults with disabilities to access independent living and employment services so they can more successfully transition from the youth entitlement system to the adult eligibility system. Our Resource Center will also help family members and professionals improve their capacity to support these young adults with disabilities on their journey. To learn more and find resources scan the QR Codes above or visit Families Helping Families of Greater New Orleans website.
Can I work if I receive SSI? Yes! One of SSA’s highest priorities is to help disabled people take advantage of employment opportunities and achieve greater financial independence. Work incentives and employment supports help people with disabilities and blind SSI recipients go to work by minimizing the risk of losing their SSI or Medicaid benefits. What is Social Security Disability Insurance (SSDI)? SSA provides Social Security Disability Insurance (SSDI) monthly payments to people who have developed a disability or who are blind and who are “insured” by workers’ contributions to the Social Security trust fund. These contributions are based on someone’s earnings (or those of your spouse or parents) as required by the Federal Insurance Contributions Act (FICA). Many people work while receiving benefits. Timothy Elliott is a disabled Veteran of the U.S. Navy who did not return to work for 10 years after his disability for fear of losing his benefits. With support and tools, he has successfully balanced working and receiving benefits for 20 years. Read Timothy’s full story. Can I work if I receive SSDI? Yes! After you start receiving SSDI, you may want to try working again. Work incentives can help you keep your cash benefits and Medicare while you test your ability to work. SSA has a publication, Working While Disabled: How We Can Help, that explains a beneficiary’s rights and responsibilities when they receive SSDI. I have an overpayment, what do I do? If you received a letter in the mail that says you were overpaid Social Security benefits and need to pay SSA back, you can request a waiver at any time. You can ask SSA to waive repayment if you can’t afford it and feel the error wasn’t your fault, or if you believe the overpayment is unfair for another reason. If you think that you were not overpaid or if the amount of the overpayment is not correct, you may appeal by filing a request for reconsideration. The appeal request must be filed within 60 days of receiving the notice. If SSA is currently withholding some or all of your cash payment and if you are unable to meet necessary living expenses, you can request that SSA readjust your current rate of withholding by submitting a Request for Change in Overpayment Recovery Rate. Can I work and keep my medical benefits? Many people believe that they will automatically lose their Medicare or Medicaid as soon as they obtain employment. Working, however, does not necessarily mean losing access to federal or state health care benefits because there are protections in place, called Medicare and Medicaid Employment Supports, that help working beneficiaries keep their benefits. Can I have an Achieving a Better Life Experience (ABLE) account and keep Medicaid? An Achieving A Better Life Experience (ABLE) account allows you to save amounts above the SSI resource limit and keep means-tested benefits such as SSI, Supplemental Nutrition Assistance Program (SNAP), and Medicaid. The SSI resource limit is $2,000 for an individual. In 2024, the ABLE account annual contribution limit is $18,000, but employed account owners can contribute more. Savings in the account up to $100,000 are not counted by the SSI program. Savings in the account exceeding $100,000 count toward the resource limit for SSI. A beneficiary’s Medicaid continues with any amount of savings in the account up to the state ABLE account limit. Kenley is a teenager with Down syndrome who is excited to make her own employment and financial decisions as she gets older. Kenley and her mother, Jennifer Casselman, often use digital tools to understand the interplay of Kenley’s benefits, her ABLE account, and employment. Read Kenley’s full story. Who can I contact if I have additional questions about working while receiving SSI or SSDI? SSA has work incentives, including the Ticket to Work program, which may make it possible for people receiving SSI and/or SSDI to work and still receive monthly payments. You can visit ChooseWork.SSA.gov to learn more about Ticket to Work and other work incentives. You may also call the Ticket to Work Help Line if you have questions about work, benefits, or SSA work incentives: 1-866-968-7842, Monday through Friday between 8 a.m. and 8 p.m. ET. Source: LeadCenter WIOA Policy Development
What is the Social Security Administration (SSA)? The Social Security Administration (SSA) provides Americans financial protection and support throughout life’s journey. SSA administers retirement, disability, survivor, and family benefits and enrolls individuals in Medicare. They also provide Social Security numbers, which are unique identifiers needed for individuals to work, handle financial transactions, and establish eligibility for certain government services. What is Supplemental Security Income (SSI)? SSA provides Supplemental Security Income (SSI) monthly payments to people with disabilities and older adults who have little or no income and resources. In most states, but not all, receiving SSI qualifies someone for Medicaid. Adults and children might be eligible for SSI if they have: Little or no income, and Little or no resources, and A disability, blindness, or are age 65 or older.
I Want to Know About… SSA, SSI & SSDI Financial Toolkit: Frequently Asked Questions
Working Through Conflict on the Job
In this 5-minute video by Galen Emanuele from Shift Yes, viewers can learn the Do’s and Don’ts for managing conflict at work: Do not try to resolve the problem when you are emotionally upset. Don’t treat your assumptions as the truth. Don’t accuse people or label them. Do not believe that your view is the full truth. Don’t treat people how you feel - don’t yell. Do not believe you are good at resolving conflict – it is hard work. Now that you know what NOT to do, check out the video to learn what you CAN do.
Workplace conflict can make the difference between employment and unemployment, or success and stagnation. A complicated and high-stakes conflict can set up a particularly difficult challenge for anyone, and especially those who have a disability. Work-based conflicts often add pressure creating tension at work. The conflict might escalate if the employee and employer do not have the skills to navigate an uncomfortable situation. Knowing how to avoid conflict and/or resolve it can have a lasting impact on one’s confidence and future employment. In this issue of RAISE The Standard, we will explore what it takes to help youth with disabilities manage differences of viewpoint in the workplace and find the resources and practices to maximize their career potential.
ADA and Hiring While legal action is not always the first step to take in an employment dispute, it can help to know about legal rights when interacting with a boss, HR department, or whoever serves that role. The Americans with Disabilities Act (ADA), along with many similar state laws, bans discrimination against people with disabilities. Its protections begin during the employment search and extend to the workplace. According to this law, employers must: Focus questions about the candidate’s abilities on specific job tasks, like reading or filing, not their specific diagnosis. Not withdraw a job offer because a candidate has a disability, but only if the employee is “unable to perform the essential functions of the job with accommodation.” Restrict further questions about an employee’s known disability to what is required to provide better accommodation. Work with employees, when possible, to allow them to complete job tasks. Not request information about whether a job applicant has a disability. Not allow harassment, bullying, or offensive conduct targeted toward an employee due to their disability. This extensive guidance from the Equal Opportunity Employment Commission provides more information: Persons with Intellectual Disabilities in the Workplace and the ADA Preguntas Y Respuestas Sobre Personas Con Discapacidades Intelectuales En El Lugar De Trabajo Y La Ley De Estadounidenses Con Discapacidades
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Avoiding Workplace Conflict The best way to handle workplace conflict is to avoid it all together. Here are a few strategies that can minimize the possibility of a workplace conflict. Prepare – Remember what you need to perform your job before leaving for work. Make sure that you wear any uniform, and if your clothing needs to meet safety standards, check that it does. Avoid late-night celebrations, parties, or other activities the night before an early workday. Plan ahead – Look at the overall trends and patterns in your workplace. If you know that a specific day or time of year will be busier or more intense, try to save your energy around that time. Anticipate what your coworkers and supervisors will expect based on their past expectations. Ask questions – If you are struggling to complete a workplace task, ask for help before the small problem grows into a bigger one. This is especially important with any physical equipment you may encounter in your work. Present professionally – Wear clothing that meets the level of formality your workplace requires. Avoid being the only employee who dresses casually, and when in doubt, look at what your coworkers are doing. Avoid excess phone use – If you are on your phone at work, others may think you are not working. In a workplace where employees can use their cell phones during the workday, make sure you use the phone less than or as much as your coworkers do, not more. In a workplace where employees are banned from using their cell phones, do not use your phone except in an emergency. Arrive on time – Consider the possibility of public transportation delays, traffic jams, or detours when you decide how early you will leave for work. Aim to arrive a few minutes early, and more if you have a long trip with more possible problems on the way. Prepare necessary paperwork – If you need paperwork for your job, like certifications or proof of education, bring it when your employer needs it. Be friendly – Avoid a surly or angry demeanor on the jobsite. Norms for friendliness vary depending on the workplace, but in general, avoid being mean. It seems obvious and unhelpful but ignoring this rule can quickly set up conflict. This video from INCLUDEnyc has these solid ideas, packaged in the context of a job interview, but are good as general workplace advice.
From Challenges to CEO: How My Non-Speaking Son with Autism Built a Thriving Delivery Business
LAURA
MARY
"He is not just IN his community; he is a VITAL PART of his community."
My name is Jeannie Doiron, and my son Lucas has a story to tell. I’ll tell you all about it through my eyes. Lucas is 30 years old, he has Autism, and he is a non-speaker. He lives with me in our home in Thibodaux, Louisiana. This is our adventure of how Lucas became the Chief Executive Officer of Lucas Delivers, LLC. You know how people will say, “I have good news and bad news. Which do you want first?” I always choose the bad first. I guess it’s in my nature to overcome things. So let’s start with the obstacles first. Lucas and I live in a rural community. I knew that the job market was not going to be easy, and his training had been janitorial in nature. He was headed for a small day habilitation program; and although it is a very good one, Lucas would have hated going there. Lucas also has a significant disability with the need for 24-hour assistance to keep him safe. Working in the community was going to be difficult without a person working beside him to keep him on task and to keep him from wandering. Lucas does not speak and does not like to use his communication device often, as it frustrates him to the point that he acts out physically. (And speaking of behavior, there are times when all I can do is get out of the way!) Okay, so that’s the honest picture of Lucas’s world. Sound a bit grim? Here’s the good news: he had some advantages. Fortunately, I work with people with disabilities, and I’ve learned a thing or two. I have a brother who worked at our local high school. He was responsible for finding the worksites in the community for high school students with disabilities. Lucas also had a New Opportunities Waiver, so he had workers on staff to assist him on a daily basis. Now we are getting somewhere! The first thing we did was highlight Lucas’s strengths and interests. Lucas likes to ride in a car, put things inside of other things, and visit people. In my head, I saw delivery and vending machines. And that’s how Lucas Delivers was born. We started Lucas’s delivery service with $60 from my pay check. Working women love his service. He delivers from farms in our area: fresh grown vegetables, fruits, yard eggs, honey, pies from little old ladies’ kitchens. We were the first delivery service in Thibodaux, this little town that you can drive across in 10 minutes. We advertise what all the farms are selling, people place orders with us, and then Lucas picks up and delivers directly to his customers. Lucas is a staple in our community. Remember I mentioned Lucas’s behaviors? If he is having a bad time, his worker brings him home to chill out for a while. He puts on his headphones, he eats a snack, he watches a little television. When he is better, he goes back to work. Lucas has Autism and has meltdowns. If he is not well, he comes home. Lucas does not speak, drive, or count money. He has a worker with him who assists him with his deliveries. His staff drive him, they count his change, and they assist in communication. Lucas’s chosen form of communication is sign language, and all of his helpers know his signs and communicate well with and for him. We put modifications in place when we find challenges, and then we overcome them! Two years ago we enlarged the business by purchasing a vending machine route. Lucas Delivers, LLC, is not a big business, but my son is so proud of his work. He is not just IN his community; he is a VITAL PART of his community. Through my work in the disability community, I encounter families all the time who never dreamed of a career for their loved one before. I am here to tell you, people with disabilities can play a vital role in their community. They have a legacy to leave behind. Oh yeah, and just for kicks, my son (who does not speak) presents at conferences. If you need encouragement, get in touch with Lucas and me. If you have a group and you want the Doirons to present on Lucas’s story and the many other things we have accomplished, please email us at lucasdelivers@jbernards.com or call (985) 803-5733.
BEBE
“Children and teenagers in these facilities are not just neglected; they are abused in ways that are shocking and inhumane.” ~ Senator Ron Wyden
In a damning new report, U.S. Senate investigators have uncovered widespread abuse and neglect in residential treatment facilities designed to care for children with developmental disabilities and behavioral needs. These facilities, which receive government funding, have been described as "warehouses of neglect."
Senate Report Exposes Shocking Abuse in Youth Treatment Facilities
Abuse and Neglect Uncovered The investigation revealed numerous instances of physical, emotional, and sexual abuse. Children were subjected to beatings, restraints, and isolation. One particularly harrowing case involved a child named Sarah, who was confined in a room with no heat and dirty clothes for days, resulting in severe skin infections. In another case, a child was found with bruises and bite marks, and yet another child was sexually abused by a staff member. Senator Ron Wyden, who led the investigation, commented, “Children and teenagers in these facilities are not just neglected; they are abused in ways that are shocking and inhumane.” Dangerous Living Conditions The report highlighted that many facilities are filthy and unsafe. Investigators found children living in squalid conditions, with broken furniture, inadequate heating, and unsanitary bathrooms. In some instances, children did not receive enough food, clean clothes, or proper medical care. One facility was found to have bedbugs and mold, further endangering the health of the children living there. Lack of Proper Oversight A significant problem identified in the report is the lack of oversight. Many states do not conduct regular inspections of these facilities, allowing dangerous conditions and abusive practices to continue unchecked. Some facilities had not been inspected for years, despite receiving complaints from parents and advocates. An investigator noted, “We found instances where children were not only physically abused but also emotionally tormented. This kind of treatment is unacceptable.” Untrained and Unvetted Staff Another critical issue is the inadequacy of staff training and background checks. In some cases, facilities hired staff without conducting proper background checks, resulting in individuals with criminal records being responsible for the care of vulnerable children. Many staff members lacked the necessary training to handle the complex needs of children with disabilities. As a result, children were often restrained improperly or punished harshly for minor infractions. Misuse of Taxpayer Funds The report also revealed that taxpayer money intended for the care of children was often misused. Instead of being spent on food, medical supplies, and necessary facility improvements, funds were diverted to luxury items for staff, such as high-end electronics and lavish office furnishings. This misuse of resources has further exacerbated the poor conditions in these facilities, leaving children without basic necessities. Calls for Reform The Senate report calls for several reforms to address these issues: Increased Oversight and Regular Inspections: Facilities should be inspected regularly to ensure they meet safety and care standards. This includes surprise inspections to prevent facilities from hiding their shortcomings. Improved Staff Training: Staff should receive comprehensive training on how to care for children with disabilities and handle behavioral issues appropriately. This includes training on non-violent crisis intervention techniques. Strict Use of Funds: Government funds should be strictly monitored to ensure they are used directly for the care and benefit of the children in these facilities. Closure of Unsafe Facilities: Facilities that fail to meet safety and care standards should be closed, and alternative placements should be found for the children living there. Senator Wyden emphasized the urgency of these reforms, stating, “It is imperative that we take immediate action to protect these vulnerable children. The abuse and neglect uncovered in this report are a national disgrace, and we must do everything in our power to ensure that every child receives the care and respect they deserve.” This comprehensive report is a wake-up call for policymakers and the public. The safety and well-being of children in residential treatment facilities must be prioritized, and immediate action is necessary to address these serious issues. For more details, you can read the full report here and find additional information from the U.S. Senate here. Resources: • Full Report • Senate Investigation News
As a parent of a child with special needs, you want to ensure they receive the best possible education in a safe and supportive environment. One way to monitor and enhance your child’s classroom experience is by requesting a camera in their special education classroom. In Louisiana, you have the right to make this request under Louisiana Revised Statute 17:1948. Here is a step-by-step guide to help you navigate this process. Understanding Louisiana RS 17:1948 Louisiana RS 17:1948 is a law that allows parents or legal guardians of students with disabilities to request the installation of cameras in special education classrooms. The purpose of this statute is to ensure the safety and well-being of students who might not be able to advocate for themselves. For a classroom to qualify, it must be a self-contained classroom or another special education setting where the majority of students receive special education services and spend at least 50% of their instructional day. The law mandates that the governing authority (district) of each public elementary and secondary school adopt policies relative to the installation and operation of cameras that record both video and audio in a classroom. Check your school district's website for its policies and procedures. Step-by-Step Guide to Requesting a Camera Gather Necessary Information Understand your child's specific needs and the circumstances that justify the installation of a camera. Be familiar with the provisions of Louisiana RS 17:1948 to support your request effectively. Check your school district’s website for its specific policies and procedures. Below are St. Tammany and Jefferson Parishes' procedures from their website: St. Tammany Parish Policies and Procedures Jefferson Parish Camera Procedures Prepare Your Request in Writing Draft a formal letter to the school principal or district's special education director. Include: Your child’s name and details about their special education program. Reasons why you believe a camera is necessary. Reference to Louisiana RS 17:1948 to show your understanding of your rights. Submit Your Request Send the letter to the appropriate school official via certified mail, email, or hand-deliver to ensure it is received and acknowledged. Some districts provide a specific form that parents need to fill out to make a request. Example: St. Tammany Parish Request Form Jefferson Parish Request Form Keep a copy of the form or letter and any additional correspondence for your records. Follow Up If you do not receive a response within the timeline set by your district’s policy and procedures, follow up with a phone call or email to check the status of your request. Be persistent yet respectful in your follow-up communications. Understand the School’s Responsibilities Once your request is received, the school district is required to respond and discuss the feasibility and logistics of installing the camera. The governing authority must adopt policies that include the location and placement of cameras, training for staff, and procedures for retaining and managing the recordings. Participate in Discussions Be involved in any meetings or discussions about the camera installation. Share your insights and listen to the school’s perspective to find a mutually agreeable solution. Monitor the Implementation After the camera is installed stay engaged with the school to ensure it functions correctly and serves its intended purpose. Request periodic reviews or updates on how the camera is being utilized and its impact on the classroom environment. Requesting a camera in your child’s special education classroom is a proactive step to ensure their safety and well-being. By following these steps and understanding your rights under Louisiana RS 17:1948, you can advocate effectively for your child’s needs. Always remember, that your involvement and persistence are key to achieving a supportive and secure educational setting for your child. For further assistance, reach out to your local Families Helping Families. For more details, you can refer to the full text of the law here. Sources: Louisiana Legislature, JUSTIA US Law, casetext, St. Tammany Parish Schools, and Jefferson Parish Schools.
How to Request a Camera in Your Child’s Special Education Classroom in Louisiana
The Fourth of July - also known as Independence Day or July 4th—has been a federal holiday in the United States since 1941, but the tradition of Independence Day celebrations goes back to the 18th century and the American Revolution. On July 2nd, 1776, the Continental Congress voted in favor of independence, and two days later delegates from the 13 colonies adopted the Declaration of Independence, a historic document drafted by Thomas Jefferson. From 1776 to the present day, July 4th has been celebrated as the birth of American independence, with festivities ranging from fireworks, parades and concerts to more casual family gatherings and barbecues. Cord Blood Awareness Month - July is National Cord Blood Awareness Month! Celebrate by spreading the word about cord blood. Cord blood is the term used for the blood collected from the umbilical cord and placenta (after birth) when a healthy baby is born. International Group B Strep Throat Awareness Month - This year is the 24th year of July as International Group B Strep Awareness Month being observed. It was created to bring awareness of group B strep to the general public. Since then it has been a focal opportunity for organizations and individuals around the world to tell their stories, share information, and promote healthy outcomes for babies worldwide. National Cleft and Craniofacial Awareness and Prevention Month - Cleft and craniofacial conditions affect thousands of infants, children, teens and adults in the United States each year. Some are born with congenital anomalies like cleft lip and palate, others with more complex, life-threatening craniofacial conditions. Some are burned; others are injured in accidents and animal attacks, or diagnosed with various oral/head/neck and skin diseases. Juvenile Arthritis Awareness Month - Nearly 300,000 children have been diagnosed with some form of juvenile arthritis. Juvenile idiopathic arthritis (JIA), one form of juvenile arthritis, is actually quite prevalent, affecting more than 50,000 children in the United States alone. JIA is often referred to as juvenile rheumatoid arthritis (JRA) in the United States. Fragile X Awareness Month - Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral and learning challenges, and various physical characteristics. Though FXS occurs in both genders, males are more frequently affected than females, and generally with greater severity. Fragile X Awareness Day - Saturday, July 22, 2024. World Hepatitis Day (July 28) - Worldwide, 290 million people are living with viral hepatitis unaware. Without finding the undiagnosed and linking them to care, million will continue to suffer, and lives will be lost. On World Hepatitis Day, 28 July, we call on people from across the world to take action and raise awareness to the the "missing millions". National Parents Day - In 1994, Congress unanimously passed “The Parents’ Day Resolution” establishing the fourth Sunday of July as a perennial day of commemoration. On this day each year, Americans recognize outstanding parents, celebrate the teamwork in raising children, and support the role of parental guidance in building a strong, stable society. Throughout the nation in almost every state, community leaders organize Parents’ Day events to honor parents.
Disability Pride Month is celebrated every July and is an opportunity to honor the history, achievements, experiences, and struggles of the disability community. Why July? It marks the anniversary of the Americans with Disabilities Act, landmark legislation that broke down barriers to inclusion in society. But barriers still exist, which is why we need to honor every kind of disability, the people who identify with them, and the wide range of supports they need to thrive. 2024 Theme: “We Want a Life Like Yours” This theme comes from The Arc’s National Council of Self-Advocates. It reflects the disability community’s dreams for life experiences that they are too often denied. All month, we’ll share diverse stories of people with disabilities thriving as students, employees, leaders, engaged members of their communities and families, and more given a chance.
National Disability Independence Day - 34 years ago on July 26, 1990, the Americans with Disabilities Act (ADA) was signed into law. This historic civil rights law protects the rights of people with disabilities. National Disability Independence Day, a federally recognized day to celebrate the 1990 signing of the Americans with Disabilities Act (ADA). The landmark bill prohibits discrimination against people with disabilities and guarantees their civil right to access education, transportation, employment, and other services.
JULY
awareness Calendar
Sept. 11 Patriot's Day Remembering 9/11 Sept. 13 National Celiac Disease Awareness Day Sept. 15 World Lymphoma Awareness Day Sept. 21 World Alzheimer's Day Sept. 23 International Day of Sign Languages Sept. 29 World Heart Day
MedicAlert Awareness Month - Not all medical bracelets are created equal and that’s why August has been designated as MedicAlert Awareness Month. National Breastfeeding Month - In recognition of National Breastfeeding Month (NBM), each year the USBC hosts a social media advocacy and/or outreach campaign inviting breastfeeding coalitions, member/partner organizations, and individual supporters to join online actions and conversations to build support for the policy and practice changes needed to build a "landscape of breastfeeding support." National Wellness Month - Every August, Wellness Month empowers you to fall in love with self-care (and yourself in the process!) National Eye Exam Month - This August, observe National Eye Exam Month by learning about ways to keep your vision clear and healthy. As we age, getting a baseline eye exam can detect early signs of disease or damage to your eyes. Ophthalmologists recommend periodic eye exams every 2-4 years from the ages of 40 to 65, and every 1-2 years after the age of 65. While most symptoms are often disregarded, getting a simple checkup and following a doctor’s orders can greatly lower risks of more severe and future damage, and you can continue to enjoy healthy vision. Family Fun Month - Each year, Family Fun Month is celebrated throughout the month of August. It is the opportune time to enjoy family with extra fun and activities. National Immunization Awareness Month - (NIAM) is an annual observance held in August to highlight the importance of vaccination for people of all ages. Communities across the country use the month each year to raise awareness about the important role vaccines play in preventing serious, sometimes deadly, diseases across the lifespan. Spinal Muscular Atrophy Awareness Month The SMA community officially recognizes August as Spinal Muscular Atrophy Awareness Month, an effort that Cure SMA has been coordinating since 1996. August is a great time to spotlight the work our community does year-round to raise awareness of and funds for SMA. In addition to our usual work – hosting and attending events, advocating at state and local legislatures, sharing information about SMA. Extreme Heat - Be Prepared Happiness Happens Month - August 8 is Happiness Happens Day, a day to celebrate all things happy. Created by the Secret Society of Happy People in 1999 as Admit You’re Happy Day, this unofficial holiday encourages people to be open about their happiness and to share it with others.
National Suicide Prevention Month All month, mental health advocates, prevention organizations, survivors, allies, and community members unite to promote suicide prevention awareness. National Suicide Prevention Week is the Monday through Sunday surrounding World Suicide Prevention Day. It’s a time to share resources and stories, as well as promote suicide prevention awareness. World Suicide Prevention Day is September 10. It’s a time to remember those affected by suicide, to raise awareness, and to focus efforts on directing treatment to those who need it most.
SEPTEMBER
Blood Cancer Awareness Month - September was designated as National Blood Cancer Awareness Month in 2010 by the United States Congress. In recognition of Blood Cancer Awareness Month, the Leukemia Research Foundation is conducting a social media initiative to increase awareness about all blood cancers, including leukemia, lymphoma, multiple myeloma, and myelodysplastic syndromes. Childhood Cancer Awareness Month - Families, caregivers, charities and research groups across the United States observe September as Childhood Cancer Awareness Month. In the U.S., 15,780 children under the age of 21 are diagnosed with cancer every year; approximately 1/4 of them will not survive the disease. Muscular Dystrophy Awareness Month - There are many ways to get involved with MDA. Whether you’re looking to create a fundraiser, host a game night, volunteer at a camp, run a marathon, or advocate for the cause, the ways to get involved are endless. Newborn Screening Awareness Month - Every September, Baby's First Test shares newborn screening facts, videos and stories to help raise awareness of newborn screening among new and expecting parents, healthcare professionals, and the public! National Childhood Obesity Awareness Month - Learn ways to promote healthy growth in children and prevent obesity. National Preparedness Month - (NPM) is recognized each September to promote family and community disaster and emergency planning now and throughout the year. Be Ready for Disasters. National Recovery Month - a national observance held every September to educate Americans that substance use treatment and mental health services can enable those with a mental and/or substance use disorder to live a healthy and rewarding life. National Sickle Cell Month September is National Sickle Cell Awareness Month, designated by Congress to help focus attention on the need for research and treatment of sickle cell disease. World Alzheimer’s Month Each September, people unite from all corners of the world to raise awareness and to challenge the stigma that persists around Alzheimer’s disease and all types of dementia. The 2023 theme is Never too early, never too late. The ‘Never too early, never too late‘ campaign aims to underscore the pivotal role of identifying risk factors and adopting proactive risk reduction measures to delay, and potentially even prevent, the onset of dementia.
AUGUST
Tuesday, September 17th - Friday, September 20th, 2024 at the Hilton Riverside in New Orleans, Louisiana Division for Early Childhood's 40th Annual International Conference on Young Children with Disabilities and Their Families will DEC 40th Conference p.33 focus on The Future of Inclusive Practices: Creating Equitable Access, Participation, and Supports. Packed with sessions presented by experts in the field and opportunities to connect with fellow attendees who are passionate about early childhood, early intervention, and early childhood special education. DEC attendees include practitioners, researchers, family members, students, and professionals from around the globe. Early Bird 2 Registration ends July 23rd, 2024, 11:59 PM Eastern. Register early to save! Family Registration Waiver Application Family Registration Waivers are available to family members of young children with disabilities between the ages of 0 and 8. The waiver provides eligible family members with free conference registration. (The conference registration/registration waiver does not include any monetary funds, preconference workshops, special events, meals, travel, child care, or other accommodations.)
Spinal Cord Injury Awareness Month Our community is stronger when it comes together to educate the public on the challenges of living with spinal cord injury (SCI). Despite living with SCI, we believe a full, productive, and rewarding life is within the reach of anyone with the strength to believe it and the courage to make it happen.
SSI p.11
Division for Early Childhood of the Council for Exceptional Children 40th Annual International Conference on Young Children with Disabilities & Their Families
Continued on p.36
September is National Service Dog Month They provide companionship, inspire confidence, and live to serve, protect, and assist their handlers. Guide dogs, seeing eye dogs, service pets, and assistance animals are helping their humans perform tasks, accomplish lifelong goals, embark on adventures, overcome debilitating mental illnesses, and safeguard military bases across the country and around the world.
Job Conflict p.21
Centers for Independent Living Centers for Independent Living (CILs) may be able to help adults with various types of disabilities get and keep a job; they often offer employment training and coaching services, and cover a wide range of disability types, including physical disabilities. Many times, support from the staff at the CILs can help employees with disabilities understand and reduce workplace conflicts. Louisiana Statewide Independent Living Centers Louisiana Statewide Independent Living Council Southwest Louisiana Independence Center, Inc. 4320 Lake Street Lake Charles, LA 70605 Phone: 337-477-7194 Toll-Free: 833-600-5766 New Horizons Independent Living Center 1701 North Market Street Shreveport, LA 71107 Phone: 318-671-8131 Toll-Free: 877-219-7327 Resources For Independent Living 2001 21st Street Kenner, LA 70062 Phone: 504-522-1955 Toll-Free: 877-505-2260 Information and Communication Technologies Communications technologies can make work tasks easier, helping to reduce workplace conflict. Web technologies like screen readers, video communication apps, captioning software, speech recognition software, and visual assistance software can all help. Read more about Fostering Digital Inclusion in the Federal Workplace: How Persons with Disabilities Use ICT. Reporting and Managing Workplace Harassment Sometimes teasing is not funny. It’s not just “annoying.” In fact, workplace harassment is considered a form of discrimination. It is a violation of federal law. Harassment happens when a reasonable person would feel uncomfortable, intimidated, threatened, unwelcomed, degraded, humiliated, or would view the language/behavior as offensive. For more on what to do, we turned to JAN, Job Accommodation Network: If you or someone you care about is being harassed at work: Ask yourself: “Can I safely try to address the harassment with the person by whom I am being harassed?” If the person is your boss or the harassment is threatening violence, or it is happening with more than one person or a group, it may be unsafe, and you may need to move to more formal measures. Document the behaviors, words or language that is harassment. Document the specific behaviors that constitute the harassment. Bullying or harassment can include humiliating treatment, exclusion, “unrealistically high workloads or deadlines, and physical intimidation or abuse.” Make a copy of the documentation to give to your supervisor. Report the harassment to a supervisor, with as many details of the harassment as possible. With the lists of language and behaviors in writing you will be able to stay focused and to the point. Resources Disability Discrimination and Employment Decisions Job Training and Employment Programs List WorkforceGPS Resources for Disability in Public Employment Youth Voice The RAISE Youth Advocates for Change (YAFC) have produced podcasts on topics important to them as youth with disabilities, to amplify the youth voice and support parent centers as they continue to engage with youth and their families. Watch Episode 7: Co-Workers and Low Expectations. Source: RAISE Center
Farwell p.2
The U.S. Department of Education has released its 2024 determinations on state implementation of the Individuals with Disabilities Education Act (IDEA). The 2024 determinations are based on data from the 2022–2023 school year. These determinations, based on the State Performance Plan (SPP) and Annual Performance Report (APR), assess each state's efforts to meet the requirements and purposes of IDEA. Here are the key findings from this year's report: Overview of the Determination Process IDEA requires states to submit annual performance reports detailing their progress in meeting the targets set in their State Performance Plans. The U.S. Department of Education, through the Office of Special Education Programs (OSEP), evaluates these reports and issues determinations. These determinations are part of an ongoing effort to improve education for the 7.5 million infants, toddlers, children, and youth with disabilities in the United States. The determinations fall into four categories: Meets Requirements and Purposes of IDEA Needs Assistance in Implementing the Requirements of IDEA Needs Intervention in Implementing the Requirements of IDEA Needs Substantial Intervention in Implementing the Requirements of IDEA Results Driven Accountability (RDA) OSEP's accountability framework, Results Driven Accountability (RDA), emphasizes both educational results and compliance with IDEA. This balanced approach ensures that states not only protect the rights of children with disabilities but also focus on improving their educational outcomes. Key Findings for Part B (Ages 3-21) States Meeting Requirements: Alabama, Connecticut, Florida, Georgia, Illinois, Indiana, Kansas, Kentucky, Maryland, Massachusetts, Minnesota, Missouri, Nebraska, New Jersey, Pennsylvania, Republic of the Marshall Islands, Texas, Virginia, Washington, Wisconsin, Wyoming. States Needing Assistance (One Year): Arkansas, Federated States of Micronesia, Idaho, Ohio, Rhode Island, South Dakota, West Virginia. States Needing Assistance (Two or More Consecutive Years): Alaska, American Samoa, Arizona, California, Colorado, Commonwealth of the Northern Mariana Islands, Delaware, District of Columbia, Guam, Hawaii, Iowa, Louisiana, Maine, Michigan, Mississippi, Montana, Nevada, New Hampshire, New Mexico, New York, North Carolina, North Dakota, Oklahoma, Oregon, Puerto Rico, Republic of Palau, South Carolina, Tennessee, Utah, Vermont, Virgin Islands. States Needing Intervention: Bureau of Indian Education Key Findings for Part C (Birth through Age 2) States Meeting Requirements: Alabama, Arizona, Connecticut, Georgia, Iowa, Kansas, Kentucky, Louisiana, Maine, Maryland, Michigan, New Hampshire, New York, North Carolina, North Dakota, Ohio, Oklahoma, Oregon, Pennsylvania, South Dakota, Tennessee, Texas, Utah, Vermont, Virginia, Washington, West Virginia, Wisconsin, Wyoming. States Needing Assistance (One Year): Arkansas, Indiana, Mississippi, Nebraska, New Jersey, New Mexico, Puerto Rico, South Carolina. States Needing Assistance (Two or More Consecutive Years): Alaska, American Samoa, Colorado, Commonwealth of the Northern Mariana Islands, Delaware, District of Columbia, Florida, Guam, Hawaii, Idaho, Illinois, Massachusetts, Minnesota, Missouri, Montana, Nevada, Virgin Islands. States Needing Intervention: California, Rhode Island Important Considerations The determinations highlight the ongoing need for states to improve their services and outcomes for children with disabilities. As the Department emphasizes, "The IDEA determinations are part of the ongoing efforts to improve education for America’s 7.5 million infants, toddlers, children, and youth with disabilities." The 2024 determinations underscore the importance of continued focus on both compliance and educational outcomes for children with disabilities. States are encouraged to utilize the feedback from these determinations to make necessary improvements and ensure that all children with disabilities have access to the education they deserve. The Department of Education will release more detailed information about each state's performance later this summer.
How Did Our State Perform? 2024 IDEA Implementation Results Revealed!
The Louisiana Parent Training and Information Center (LaPTIC) is a program of Families Helping Families of GNO and a grant from the US Department of Education; Office of Special Education (OSEP) as Louisiana's official and only statewide federally funded Parent Training and Information Center.
Mini-Trainings
Any information provided by Families Helping Families of Greater New Orleans (FHF) and/or Louisiana Parent Training and Information Center (LaPTIC), its staff, and/or its volunteers is intended for informational and educational purposes only. Any information expressed or implied is not intended nor should be construed as legal, medical, or other professional advice. FHF and/or LaPTIC does not render legal, medical, or professional advice or recommendations; nor is legal, medical, or other professional advice implied by any information given. Any information provided should not replace consultations with qualified legal, educational, healthcare, or other professionals to meet individual or professional needs. Reference to any program, service, therapy, or treatment option does not imply endorsement by FHF and/or LaPTIC or by its organizational staff/members and should not be construed as such.
The Louisiana Department of Education is committed to helping families find the right school or early childhood center for their children, and providing them with helpful information about Louisiana’s schools. The Louisiana School Finder is an interactive, online tool that provides families with: school performance scores and early childhood performance ratings to show how well schools and centers are preparing students for the next grade-level; basic information about schools and centers such as their address, website, hours of operation, and principal or director’s name; and listings of course offerings, clubs, enrichment and extracurricular activities. To find out information about schools and early childhood centers in your area, visit www.louisianaschools.com, and type in a school or center’s name, or your zip code.
Entrenamientos en Espanol
Recorded Trainings
700 Hickory Avenue Harahan, LA 70123 504-888-9111 800-766-7736 504-353-2350 fax info@fhfofgno.org fhfofgno.org